by Kristen Estep | Feb 1, 2020 | Get Real About Migraine, Medication & Treatments, Migraine In Real Life, Patient Perspective
Written by Nicole Safran presented by Chronic Migraine Awareness, Inc. When I heard a new migraine abortive drug class, gepants, was approved by the FDA, I was ecstatic. An abortive is a medication used to stop a migraine attack after one has begun. Like many, I’ve...
by Kristen Estep | Jan 26, 2020 | Get Real About Migraine, Migraine In Real Life, Patient Perspective
Originally seen on Migraine Musings, Written by Lois Clauss, Presented by Chronic Migraine Awareness, Inc. A migraine giveth and it taketh away. It giveth you pain beyond your wildest dreams and taketh away your life, leaving you with no dreams. A recent new...
by Kristen Estep | Jan 25, 2020 | Advocacy and Migraine, Medication & Treatments, Migraine Community, Patient Perspective
On January 23, 2020 the ICER review board met in a public meeting, along with doctors and patient advocates to determine the efficacy and availability of the newest class of migraine medications. There was much testimony given about the patient trials and results of...
by Kristen Estep | Jan 19, 2020 | Advocacy and Migraine, HOH2020, Migraine Community, Migraine In Real Life
Orgininally posted on SparklyAura.com Headache on the Hill is fast approaching and I am so honored to be attending. I am looking forward to not only meeting my fellow migraine warriors, but also learning from them. I am newer to advocating for migraine and this...
by Kristen Estep | Jan 18, 2020 | Get Real About Migraine, Migraine Community, Migraine In Real Life, Uncategorized
“How are you?” “I’m fine, how are you?” But I’m not ‘fine.’ I’m so not ‘fine.’ I am depressed. I am anxious. My neurological system is hyper stimulated and on rails all the time. Visit...
by Kristen Estep | Jan 6, 2020 | Get Real About Migraine, Mental Health and Migraine, Migraine Community, Patient Perspective
Originally seen on SparklyAura.com Written by Kristen Estep Do you ever get a little bit cocky when you are feeling well? I know I do. Sometimes when you are feeling good, you almost forget about the beast. I get glimpses of my old life, my life before chronic...
by Kristen Estep | Dec 19, 2019 | Advocacy and Migraine, Mental Health and Migraine, stigma
Originally posted on MyBeautifulMigraine January 16, 2018 Written by Donna Kobayashi It was ~2009 and I was still learning to cope with my migraine changes. I was very clueless about Chronic Migraine as I knew no one with the disease. I was fighting my pants off...
by Kristen Estep | Dec 12, 2019 | Advocacy and Migraine, Mental Health and Migraine, stigma
In late March, after I crawled back to my bed from the bathroom, I finally felt well enough to attempt to crawl down the stairs. My mother-in-law was visiting that day. She visited once a week and would sit in the dark with me. I will love her forever for the kindness...
by Kristen Estep | Dec 6, 2019 | Mental Health and Migraine, stigma
Chronic Migraine Awareness, Inc. is pleased to present Part 1 of Greta A. Tramwood’s emotional story. Hi, how are you? You’re good? that’s great… how am I, you ask? I’m fine … well, I’m not really fine, I’m not even OK. Not even close to OK. You see, on...
by Kristen Estep | Nov 16, 2019 | Advocacy and Migraine, Medication & Treatments
Chronic Migraine Awareness, Inc. would like to thank Roni A.Jones for her contribution to our blog. “Stigma is a process by which the reaction of others spoils normal identity.” Quote ~ Erving Goffman In the last few years, I haven’t encountered much...
