by Kristen Estep | Feb 16, 2020 | Advocacy and Migraine, Get Real About Migraine, HOH2020, Medication & Treatments, Migraine Community, Migraine In Real Life, Patient Perspective
Originally seen on Chronic Migraine Warrior, Written by Jamie Valendy Reposted by Chronic Migraine Awareness, Inc. This week, I joined a group of 174 advocates from 45 states in Washington, DC at the 13th annual Headache on the Hill lobbying initiative, which is...
by Kristen Estep | Feb 15, 2020 | Advocacy and Migraine, Get Real About Migraine, HOH2020, Medication & Treatments, Migraine Community, Migraine In Real Life, Patient Perspective, Uncategorized
Originally posted on MyBeautifulMigraine, Written by Donna Kobayashi, Reposted by Chronic Migraine Awareness, Inc. What was our mission? Addressing and ending the headache doctor shortage. The US has less than 1/6 the number of headache doctors it needs. By passing...
by Kristen Estep | Feb 15, 2020 | Advocacy and Migraine, Get Real About Migraine, HOH2020, Medication & Treatments, Migraine Community, Migraine In Real Life, Patient Perspective
Originally posted on Migraine Chronicles, Written by Nikki Sf, Reposted by Chronic Migraine Awareness, Inc. This year I was honored to attend the 13th annual Headache on the Hill as a patient advocate. I traveled to Washington D.C. along with 179 patient advocates,...
by Kristen Estep | Feb 14, 2020 | Advocacy and Migraine, HOH2020, Medication & Treatments, Migraine Community, Migraine In Real Life
Written by Kristen Estep for Chronic Migraine Awareness, Inc. Wow!! What an awesome experience! We had an all time high attendance with 179 advocates from 45 states being represented. I also don’t want to forget all of the caregivers who were there to support their...
by Kristen Estep | Feb 3, 2020 | Advocacy and Migraine, Medication & Treatments, Mental Health and Migraine, Migraine Community, Migraine In Real Life, Patient Perspective, stigma
Written by Deborah Bloom, for Chronic Migraine Awareness Inc. How do you feel before seeing a new neurologist or headache specialist? What thoughts go through your head as you anticipate going to meet a new neurologist or headache specialist? For me it had become...
by Kristen Estep | Jan 25, 2020 | Advocacy and Migraine, Medication & Treatments, Migraine Community, Patient Perspective
On January 23, 2020 the ICER review board met in a public meeting, along with doctors and patient advocates to determine the efficacy and availability of the newest class of migraine medications. There was much testimony given about the patient trials and results of...
