Category: Patient Perspective
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#LetsGetAfterIt
Written By: Catherine Charrett-Dykes Founder and President of Chronic Migraine Awareness, Inc. Dear Chris, For the past month or so now, the nation has watched you live and report on your experience with this new disease, this new pandemic – Coronavirus. Your reporting connected with me in a way that gives me hope that we…
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My Thoughts on Receiving Botox During Covid-19
Written By: Peggy Artman, for Chronic Migraine Awareness, Inc. I have been getting Botox injections to help with my chronic migraine attacks every quarter for more than five years. My migraine disease is stubborn and has not responded to very many medications. I wondered in the past if it was still worth the effort to…
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My Impasse
Chronic Migraine Awareness, Inc. is pleased to present The Struggle of Understanding My Migraine Disease Written By: Alexes Elizabeth It was too hot, maybe? Did I just faint on the schoolyard playground? After many hours of traveling out-of-state, it was at a park that I wondered, how much time has passed since this unexplainable occurrence?…
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Self-Care During the Covid-19 Crisis
Written by Peggy Artman for Chronic Migraine Awareness, Inc. In my state, we are not officially quarantined, but we might as well be since we are required to follow the federal and state protocols. I don’t know about you, but I’m tired of all the worries about paper products and hand and surface sanitizers. We…
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What Do You See When You Look At Me?
Originally posted on SparklyAura.com Written by Kristen Estep Before chronic migraine if you saw me out in public, you might have looked at me & thought I had it all together. I probably would’ve had a smile on my face, my hair done, dressed nice. “It doesn’t matter how you feel, it only matters how…
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What Would Make Migraine Advertising Better?
Written by Catherine Charrett-Dykes President and CEO Chronic Migraine Awareness, Inc. There are currently numerous television commercial advertisements discussing medications that are available for various disease states. We have learned about erectile dysfunction, fibromyalgia, psoriatic arthritis, Alzheimer’s and Parkinson’s. Some commercials do more than inform the public there is help available, they educate people about…
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Headache on the Hill 2020; Jamie’s Story
Originally seen on Chronic Migraine Warrior, Written by Jamie Valendy Reposted by Chronic Migraine Awareness, Inc. This week, I joined a group of 174 advocates from 45 states in Washington, DC at the 13th annual Headache on the Hill lobbying initiative, which is organized by the Alliance for Headache Disorders Advocacy (AHDA). This was my second time participating…
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The Burden of Migraine #HOH2020; Donna’s Story
Originally posted on MyBeautifulMigraine, Written by Donna Kobayashi, Reposted by Chronic Migraine Awareness, Inc. What was our mission? Addressing and ending the headache doctor shortage. The US has less than 1/6 the number of headache doctors it needs. By passing bill H.R.3414 and S.2892 and amending language to “approved headache fellowships,” instead of “residencies.” With so few specialists,…
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Headache on the Hill 2020; Nikki’s Story
Originally posted on Migraine Chronicles, Written by Nikki, Reposted by Chronic Migraine Awareness, Inc. This year I was honored to attend the 13th annual Headache on the Hill as a patient advocate. I traveled to Washington D.C. along with 179 patient advocates, caregivers, and headache physicians to advocate for a common ‘“ask.” Although we all share a…
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The Patient Doctor Relationship
Written by Deborah Bloom, for Chronic Migraine Awareness Inc. How do you feel before seeing a new neurologist or headache specialist? What thoughts go through your head as you anticipate going to meet a new neurologist or headache specialist? For me it had become thoughts like, will they treat me with respect and compassion? Will…
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