Category: HOH2020
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Headache on the Hill 2020; Jamie’s Story
Originally seen on Chronic Migraine Warrior, Written by Jamie Valendy Reposted by Chronic Migraine Awareness, Inc. This week, I joined a group of 174 advocates from 45 states in Washington, DC at the 13th annual Headache on the Hill lobbying initiative, which is organized by the Alliance for Headache Disorders Advocacy (AHDA). This was my second time participating…
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The Burden of Migraine #HOH2020; Donna’s Story
Originally posted on MyBeautifulMigraine, Written by Donna Kobayashi, Reposted by Chronic Migraine Awareness, Inc. What was our mission? Addressing and ending the headache doctor shortage. The US has less than 1/6 the number of headache doctors it needs. By passing bill H.R.3414 and S.2892 and amending language to “approved headache fellowships,” instead of “residencies.” With so few specialists,…
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Headache on the Hill 2020; Nikki’s Story
Originally posted on Migraine Chronicles, Written by Nikki, Reposted by Chronic Migraine Awareness, Inc. This year I was honored to attend the 13th annual Headache on the Hill as a patient advocate. I traveled to Washington D.C. along with 179 patient advocates, caregivers, and headache physicians to advocate for a common ‘“ask.” Although we all share a…
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Headache on the Hill 2020
Written by Kristen Estep for Chronic Migraine Awareness, Inc. Wow!! What an awesome experience! We had an all time high attendance with 179 advocates from 45 states being represented. I also don’t want to forget all of the caregivers who were there to support their loved ones, including Gunner the service dog. Their support was…
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HOH2020 It’s Almost Here!!
Orgininally posted on SparklyAura.com Headache on the Hill is fast approaching and I am so honored to be attending. I am looking forward to not only meeting my fellow migraine warriors, but also learning from them. I am newer to advocating for migraine and this opportunity is monumental for me. This sounds kind of weird…