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What Do You See When You Look At Me?
Originally posted on SparklyAura.com Written by Kristen Estep Before chronic migraine if you saw me out in public, you might have looked at me & thought I had it all together. I probably would’ve had a smile on my face, my hair done, dressed nice. “It doesn’t matter how you feel, it only matters how…
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What Would Make Migraine Advertising Better?
Written by Catherine Charrett-Dykes President and CEO Chronic Migraine Awareness, Inc. There are currently numerous television commercial advertisements discussing medications that are available for various disease states. We have learned about erectile dysfunction, fibromyalgia, psoriatic arthritis, Alzheimer’s and Parkinson’s. Some commercials do more than inform the public there is help available, they educate people about…
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Headache on the Hill 2020; Jamie’s Story
Originally seen on Chronic Migraine Warrior, Written by Jamie Valendy Reposted by Chronic Migraine Awareness, Inc. This week, I joined a group of 174 advocates from 45 states in Washington, DC at the 13th annual Headache on the Hill lobbying initiative, which is organized by the Alliance for Headache Disorders Advocacy (AHDA). This was my second time participating…
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The Burden of Migraine #HOH2020; Donna’s Story
Originally posted on MyBeautifulMigraine, Written by Donna Kobayashi, Reposted by Chronic Migraine Awareness, Inc. What was our mission? Addressing and ending the headache doctor shortage. The US has less than 1/6 the number of headache doctors it needs. By passing bill H.R.3414 and S.2892 and amending language to “approved headache fellowships,” instead of “residencies.” With so few specialists,…
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Headache on the Hill 2020; Nikki’s Story
Originally posted on Migraine Chronicles, Written by Nikki, Reposted by Chronic Migraine Awareness, Inc. This year I was honored to attend the 13th annual Headache on the Hill as a patient advocate. I traveled to Washington D.C. along with 179 patient advocates, caregivers, and headache physicians to advocate for a common ‘“ask.” Although we all share a…
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Headache on the Hill 2020
Written by Kristen Estep for Chronic Migraine Awareness, Inc. Wow!! What an awesome experience! We had an all time high attendance with 179 advocates from 45 states being represented. I also don’t want to forget all of the caregivers who were there to support their loved ones, including Gunner the service dog. Their support was…
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The Patient Doctor Relationship
Written by Deborah Bloom, for Chronic Migraine Awareness Inc. How do you feel before seeing a new neurologist or headache specialist? What thoughts go through your head as you anticipate going to meet a new neurologist or headache specialist? For me it had become thoughts like, will they treat me with respect and compassion? Will…
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Hope with Gepants
Written by Nikki presented by Chronic Migraine Awareness, Inc. When I heard a new migraine abortive drug class, gepants, was approved by the FDA, I was ecstatic. An abortive is a medication used to stop a migraine attack after one has begun. Like many, I’ve tried the available abortive medications and have not had the…
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It Giveth and it Taketh Away…
Originally seen on Migraine Musings, Written by Lois Clauss, Presented by Chronic Migraine Awareness, Inc. A migraine giveth and it taketh away. It giveth you pain beyond your wildest dreams and taketh away your life, leaving you with no dreams. A recent new medication, Aimovig, started with my first injection July 24th and it changed…
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ICER Midwest review
On January 23, 2020 the ICER review board met in a public meeting, along with doctors and patient advocates to determine the efficacy and availability of the newest class of migraine medications. There was much testimony given about the patient trials and results of those. Concurrently, there was testimony given about prescriber limits and cost…
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