Category: Migraine Community
-
The Patient Doctor Relationship
Written by Deborah Bloom, for Chronic Migraine Awareness Inc. How do you feel before seeing a new neurologist or headache specialist? What thoughts go through your head as you anticipate going to meet a new neurologist or headache specialist? For me it had become thoughts like, will they treat me with respect and compassion? Will…
-
ICER Midwest review

On January 23, 2020 the ICER review board met in a public meeting, along with doctors and patient advocates to determine the efficacy and availability of the newest class of migraine medications. There was much testimony given about the patient trials and results of those. Concurrently, there was testimony given about prescriber limits and cost…
-
HOH2020 It’s Almost Here!!

Orgininally posted on SparklyAura.com Headache on the Hill is fast approaching and I am so honored to be attending. I am looking forward to not only meeting my fellow migraine warriors, but also learning from them. I am newer to advocating for migraine and this opportunity is monumental for me. This sounds kind of weird…
-
On Going to a neighbor’s barbeque get together…

“How are you?” “I’m fine, how are you?” But I’m not ‘fine.’ I’m so not ‘fine.’ I am depressed. I am anxious. My neurological system is hyper stimulated and on rails all the time. Visit http://www.MyBeautifulMigraine.blog to read the rest of Donna Kobayashi’s story of socializing with migraine disease.
-
Wishful Thinking

Originally seen on SparklyAura.com Written by Kristen Estep Do you ever get a little bit cocky when you are feeling well? I know I do. Sometimes when you are feeling good, you almost forget about the beast. I get glimpses of my old life, my life before chronic migraine, and I start to foolishly think…
