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Headache on the Hill 2020; Nikki’s Story
Originally posted on Migraine Chronicles, Written by Nikki, Reposted by Chronic Migraine Awareness, Inc. This year I was honored to attend the 13th annual Headache on the Hill as a patient advocate. I traveled to Washington D.C. along with 179 patient advocates, caregivers, and headache physicians to advocate for a common ‘“ask.” Although we all share a…
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Headache on the Hill 2020
Written by Kristen Estep for Chronic Migraine Awareness, Inc. Wow!! What an awesome experience! We had an all time high attendance with 179 advocates from 45 states being represented. I also don’t want to forget all of the caregivers who were there to support their loved ones, including Gunner the service dog. Their support was…
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The Patient Doctor Relationship
Written by Deborah Bloom, for Chronic Migraine Awareness Inc. How do you feel before seeing a new neurologist or headache specialist? What thoughts go through your head as you anticipate going to meet a new neurologist or headache specialist? For me it had become thoughts like, will they treat me with respect and compassion? Will…
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Hope with Gepants
Written by Nikki presented by Chronic Migraine Awareness, Inc. When I heard a new migraine abortive drug class, gepants, was approved by the FDA, I was ecstatic. An abortive is a medication used to stop a migraine attack after one has begun. Like many, I’ve tried the available abortive medications and have not had the…
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It Giveth and it Taketh Away…
Originally seen on Migraine Musings, Written by Lois Clauss, Presented by Chronic Migraine Awareness, Inc. A migraine giveth and it taketh away. It giveth you pain beyond your wildest dreams and taketh away your life, leaving you with no dreams. A recent new medication, Aimovig, started with my first injection July 24th and it changed…
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ICER Midwest review
On January 23, 2020 the ICER review board met in a public meeting, along with doctors and patient advocates to determine the efficacy and availability of the newest class of migraine medications. There was much testimony given about the patient trials and results of those. Concurrently, there was testimony given about prescriber limits and cost…
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HOH2020 It’s Almost Here!!
Orgininally posted on SparklyAura.com Headache on the Hill is fast approaching and I am so honored to be attending. I am looking forward to not only meeting my fellow migraine warriors, but also learning from them. I am newer to advocating for migraine and this opportunity is monumental for me. This sounds kind of weird…
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On Going to a neighbor’s barbeque get together…
“How are you?” “I’m fine, how are you?” But I’m not ‘fine.’ I’m so not ‘fine.’ I am depressed. I am anxious. My neurological system is hyper stimulated and on rails all the time. Visit http://www.MyBeautifulMigraine.blog to read the rest of Donna Kobayashi’s story of socializing with migraine disease.
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Wishful Thinking
Originally seen on SparklyAura.com Written by Kristen Estep Do you ever get a little bit cocky when you are feeling well? I know I do. Sometimes when you are feeling good, you almost forget about the beast. I get glimpses of my old life, my life before chronic migraine, and I start to foolishly think…
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That Thing Lizzie Did
Originally posted on MyBeautifulMigraine January 16, 2018 Written by Donna Kobayashi It was ~2009 and I was still learning to cope with my migraine changes. I was very clueless about Chronic Migraine as I knew no one with the disease. I was fighting my pants off against it; in the Botox regimen, taking oral preventatives,…
Chronic Migraine Awareness 